Raising a child with Treacher Collins syndrome

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The 2012 children’s novel Wonder is being adapted into a Hollywood movie starring Julia Roberts.

Wonder tells the story about a 10-year boy with Treacher Collins syndrome who starts school after being home-schooled for years. Jacob Trembley plays the boy, Auggie, who gets bullied because of his rare facial medical deformity. The film is scheduled for release in April, 2017.

Treacher Collins syndrome is a rare, genetic condition affecting the way the face develops — especially the cheekbones, jaws, ears and eyelids. These differences often cause problems with breathing, swallowing, chewing, hearing and speech.

How severe the syndrome is varies widely from child to child. Treacher Collins syndrome is present when a baby is born (congenital).

The syndrome occurs in about 1 in 50,000 newborns worldwide.

Blogger Eloise, herself a parent of a child with the syndrome, shares both her concerns and hopes for the film in this blog:

Ten things about parenting a child with Treacher Collins Syndrome

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Read more: How children with Treacher Collins and hearing loss can benefit from a Baha solution